Wow! I feel old! School started for us here in Michigan yesterday and I have a 4th grader and a preschooler! Really? A 4th grader?! Sometimes I wish I could slow time down just a bit!
Bryce was not excited at all about starting school, though Weylin and I both really think he was ready to! It has been a hard adjustment for him actually having a structured bedtime now, but he will deal and get used to it! He also didn’t want to go to school because he says he has a “mean” teacher! He thought this before even meeting her because she used to be in the military. I think I like her already! I don’t know why, but they are even learning some German right now. One of Bryce’s biggest complaints is that they have to read a new biography every week and then report on it. I think he just doesn’t like not having a choice in what he reads! That’s what home is for anyway! All in all, I think he likes it more than he lets on. The new teacher with a new set of rules will just take some time to get used to!
Ethan also is going to school! He will be going to preschool 5 days a week to a PPI classroom. The first day was a little rough for both Ethan and I! We both cried a little as the bus pulled away from the house, but we quickly got over it! The only way that Weylin and I would allow Ethan to go to school is if his nurse could go with him, so it was worked out that way! She rides the bus with him to and from school and is with him in the classroom. Just so he doesn’t get completely gipped on having the whole preschool experience, his nurse is just like another helper in the classroom and is not completely tied to his side. In going to school, Ethan will receive some PT, OT, and speech therapy at school. It seems very odd to not go to outpatient PT on Wednesdays since we have been going for a couple years. However, I have to say the time off is so nice—sorry Dawn!
Healthwise, Ethan is doing so well! You cannot tell that he just had open heart surgery about 2 ½ weeks ago, other than the steri-strips on his chest! We went to Vent Clinic today and he was entertaining as ever! Weylin said he wonders what people think when they walk by our room and we are all laughing with the doctor! Since Ethan has had the surgery, we have just left him on the higher vent settings while sleeping and really haven’t pushed him. Today, we got the orders to go ahead and start weaning the vent again. We are going to start tonight by just taking away the back-up breath rate on the vent and will leave it like this for two weeks. Assuming he tolerates this, which we don’t have any doubt he will, we will just take him off the vent and let him go for as long as he can! The team doesn’t think he needs to be completely weaned down like he was before. Ethan also got another trach cap at clinic and wore it all day long without any problems! He even napped in the van with it on! Just the thought that there may be a light at the end of the tunnel is so exciting! It is still quite a way off, but we can see it! Oh, and we hope to within the next couple weeks start weaning Ethan’s Lasix! I think he is ready for that too! We just have to take it slowly since that is what his body always tells us, but the vent team is great about that and setting up a good slow schedule!
Bryce was not excited at all about starting school, though Weylin and I both really think he was ready to! It has been a hard adjustment for him actually having a structured bedtime now, but he will deal and get used to it! He also didn’t want to go to school because he says he has a “mean” teacher! He thought this before even meeting her because she used to be in the military. I think I like her already! I don’t know why, but they are even learning some German right now. One of Bryce’s biggest complaints is that they have to read a new biography every week and then report on it. I think he just doesn’t like not having a choice in what he reads! That’s what home is for anyway! All in all, I think he likes it more than he lets on. The new teacher with a new set of rules will just take some time to get used to!
Ethan also is going to school! He will be going to preschool 5 days a week to a PPI classroom. The first day was a little rough for both Ethan and I! We both cried a little as the bus pulled away from the house, but we quickly got over it! The only way that Weylin and I would allow Ethan to go to school is if his nurse could go with him, so it was worked out that way! She rides the bus with him to and from school and is with him in the classroom. Just so he doesn’t get completely gipped on having the whole preschool experience, his nurse is just like another helper in the classroom and is not completely tied to his side. In going to school, Ethan will receive some PT, OT, and speech therapy at school. It seems very odd to not go to outpatient PT on Wednesdays since we have been going for a couple years. However, I have to say the time off is so nice—sorry Dawn!
Healthwise, Ethan is doing so well! You cannot tell that he just had open heart surgery about 2 ½ weeks ago, other than the steri-strips on his chest! We went to Vent Clinic today and he was entertaining as ever! Weylin said he wonders what people think when they walk by our room and we are all laughing with the doctor! Since Ethan has had the surgery, we have just left him on the higher vent settings while sleeping and really haven’t pushed him. Today, we got the orders to go ahead and start weaning the vent again. We are going to start tonight by just taking away the back-up breath rate on the vent and will leave it like this for two weeks. Assuming he tolerates this, which we don’t have any doubt he will, we will just take him off the vent and let him go for as long as he can! The team doesn’t think he needs to be completely weaned down like he was before. Ethan also got another trach cap at clinic and wore it all day long without any problems! He even napped in the van with it on! Just the thought that there may be a light at the end of the tunnel is so exciting! It is still quite a way off, but we can see it! Oh, and we hope to within the next couple weeks start weaning Ethan’s Lasix! I think he is ready for that too! We just have to take it slowly since that is what his body always tells us, but the vent team is great about that and setting up a good slow schedule!
1 comment:
I am so glad Ethan is doing so well, you are amazing being able to deal with all of this while pregnant I found it hard to have the engergy to feed myself.
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