Another cut and paste job

I apologize again for the cut and paste, but I wanted to update everyone about Ethan. This is from our care page posting, and I am going to bed soon!

I need to start out by saying how extremely thankful we are for all the prayers that have been offered in our behalf today. Through all the fasting, prayers, and thoughts, I was able to feel some peace today and we actually got some answers. We still have a ways to go, but we are now on the right track I believe. We are so blessed with our fantastic families that always jump in when we need them to! I have been touched so much by everyone. Thanking you just doesn’t seem like nearly enough!

Are you waiting for the answers yet?

I e-mailed Ethan’s cardiologist last night. We are so blessed to have him as Ethan’s doctor! I can e-mail him and usually get a response back that same day. He is truly a great doctor! He helped put my mind at ease some when he said that it doesn’t sound like Ethan’s heart is the problem. He said that if it was Ethan’s heart, he wouldn’t have the energy he has now!

On to today…last night I had also e-mailed our friendly NP from the vent team just letting her know of what had happened last night after hours. She called me this morning and said that she felt we should just bring Ethan to the ER at U of M and it was finally time to get down to the bottom of this. So, like good parents, we took Ethan to Ann Arbor and spent the day there. Ethan finally got the ultrasound done of the lumps on his neck. The preliminary verdict is that they are just groups of blood vessels. The theory is that when we tried to take away some of his diuretic, the fluid just backed up and it is showing up in his neck. Ethan got another whammo dose of Lasix in the ER and he will get one more dose tomorrow. His pulmonologist thinks that he is retaining fluid in his lungs and that is why his oxygen levels are lower than normal. It seems so simple, but yet so complicated.

The other theory that cardiology threw out at us was that “something is blocked somewhere.” We are to give the meds and watch Ethan. If the lumps do not disappear within the next week, Ethan will probably have to undergo more testing, like and MRI or something similar. Out of all of this, we have more questions, but we finally seem to have some answers too! Weylin, Ethan, and his nurse are heading to Ann Arbor again for a fun-filled day of appointments on Thursday! I am a little sad that I am missing the appointments, but it will be good for Weylin to do! Ethan will have an echo and see his cardiologist, see his vent team, and have his yearly check-up with the nephrologist.

Again, we appreciate every single prayer offered for us!